Understanding and Living with Sickle Cell Coast to Coast Joint Chapter Webinar

NCBW Resolution of Sickle Cell: RESOLUTION ON Sickle Cell Disease (1).pdf

To Register: Coast to Coast Black Women's Initiative: Sickle Cell Webinar Tickets, Sat, Dec 4, 2021 at 1:00 PM EST (10:00 AM PST) | Eventbrite

The National Coalition of 100 Black Women, Inc. invites you to our Coast-to-Coast Women's Health Initiative: Sickle Cell Disease Webinar. This virtual event will take place on Saturday, December 4th starting 1:00 pm EST (10:00 am PST). Guest Speakers include:

• Black Women's Health Imperative - Dr. Linda Blount
• Quality of Life Pharmacy - Dr. Terri Peters
• GBT Pharmaceutical, Vice President of Research & Development - Dr. Kim Smith Whitley
• Howard University School of Pharmacy, Assoc. Prof., and Clinical Physician, Sickle Cell Disease Center - Dr. Salome Weaver
• Sickle Cell Foundation - Ms. Deborah Green

(3) $50 Amazon Gift Card Giveaways

For more information: Email: info@ncbwpgc.net

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California NCBW Chapters: Central Valley, Los Angeles, Oakland/Bay Area, San Francisco and Silicon Valley

Maryland NCBW Chapters: Maryland Anne Arundel County, Baltimore Metropolitan and Prince George's County

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To understand the impact of Sickle Cell Disease, visit these resources:

BlackDoctor.org - Sickle Cell & The Black Community: How To Fight Back - BlackDoctor.org - Where Wellness & Culture Connect 

Spark Sickle Cell Change

Center for Disease Control - Data & Statistics on Sickle Cell Disease | CDC 

In the United States

The exact number of people living with SCD in the U.S. is unknown. Working with partners, the CDC supports projects to learn about the number of people living with SCD to better understand how the disease impacts their health.

It is estimated that:

• SCD affects approximately 100,000 Americans.
• SCD occurs among about 1 out of every 365 Black or African-American births.
• SCD occurs among about 1 out of every 16,300 Hispanic-American births.
• About 1 in 13 Black or African-American babies is born with sickle cell trait (SCT).

Mortality

• Sickle cell-related death among Black or African-American children younger than 4 years of age fell by 42% from 1999 through 2002. This drop coincided with the introduction in 2000 of a vaccine that protects against invasive pneumococcal disease.
• Relative to the rate for the period 1983 through 1986, the SCD mortality rate for the period 1999 through 2002 decreased by:
  • 68% at age 0 through 3 years;
  • 39% at age 4 through 9 years; and
  • 24% at age 10 through 14 years.
• Mortality Among Children with Sickle Cell Disease Identified by Newborn Screening During 1990-1994 — California, Illinois, and New York:
  • Among the children with Hb SS disease, 1% died as a result of SCD-related causes during the first 3 years of life.
  • In California and Illinois, by the end of 1995, the cumulative mortality rate was 1.5 per 100 Black or African-American children with SCD. The equivalent cumulative mortality rate for all Black or African-American infants born during this period in California and Illinois was 2.0 per 100 Black or African-American newborns.